Role of NHS in raising awareness about prostate cancer risk

Addressing NHS ambitions of earlier diagnosis and tackling health inequalities

Supporting our NHS

We’d like to support our primary and secondary care colleagues in achieving better outcomes for men at risk of prostate cancer and ensuring NHS goals related to early cancer diagnosis and CORE20PLUS5 and the health inequalities agenda are achieved.

How we can support

For primary care colleagues in England, the DES specification states that a PCN must seek to improve health outcomes for its population using a data-driven approach and population health management techniques in line with guidance and the CORE20PLUS5 approach.

We’ve outlined the detail of the specification below along with how we can support you with NHS goals. If you are in a devolved nation, consider the below as a quality improvement exercise. 

Specification  

What we can offer  

1. 75% cancers diagnosed
at stage 1 & 2 NHS Long
Term Plan

  • Email us for resources and publications to raise awareness of prostate cancer risk, ensuring men make informed decisions about their health so they can get checked early avoiding late diagnosis

2. Address health inequalities
targeting areas of
deprivation CORE20PLUS5

  • Email us for Insights into your demographics, data and how we can support with addressing health inequalities in your area

3. Use insightful analytics

  • Data and analysis for your region to inform activity

4. Improve data recording and use, including ethnicity

  • The appendices has a series of SNOMED codes for recording Black ethnicity
  • Guidance for Accurx and Iplato ethnicity questionnaires
  • Watch our session on the benefits of collecting data
    which includes insights from communities about ethnicity data collection

5. Improve outcomes
in population groups
where there is
greatest opportunity

  • Email us at [email protected] when organising Black community engagement events
  • Toolkit to deliver effective outreach, messaging, behavioural science insights to Black communities

6. Review cancer referral
practice in collaboration
with partners and work to
improve early diagnosis

  • We can support and collaborate with you to understand your data and support with quality improvement work
  • Guidance outlined below to achieve earlier diagnosis along with support for delivery

7. To address health
inequalities, a PCN should:
a) work in partnership within local communities to deliver effective outreach and
b) target care to address
health inequalities that
are amendable to primary
care intervention

  • Our toolkit that provides insights on engaging with Black communities to deliver effective outreach, messaging, behavioural science insights.
  • Ongoing support from our Health Services directorate to help define and deliver your approach/project

For support and advice contact us today

Men want to know about the benefits of early diagnosis

Prostate cancer is different from other cancers as early, curable prostate cancer does not normally cause symptoms. This is why we advocate risk awareness, and informing men about what they can do about it.

Our recent research published in June 2024, in the British Journal of General Practioners found that men want to know about the benefits of what an earlier diagnosis means, in order to value and appreciate the difference it’ll make to their survival rates. It’s important, therefore to provide men with accurate, balanced and non-biased information so that they can make informed decisions about their health.

The below shows demonstrates the changing survival rates based on 5 year and 10 year data and highlights the importance of finding men before their cancer progresses to later stages. 

What is clear, is that men diagnosed earlier have better survival rates than those diagnosed later. The current evidence cites that only about half of prostate cancers are caught early.

Recommendation

To have any hope of meeting the UK’s ambitions of diagnosing 75% of all cancers at stage-1 or 2 by 2028, as outlined in the NHS Long Term Plan, men at risk need to be told about their risk of being diagnosed with prostate cancer and to understand the benefits of an earlier diagnoses.

Insightful analytics and data recording
The recent NHS statement on health inequalities in November 2023, highlighted the role that Integrated Care Boards in England have in collecting data to support targeted work to address health inequalities. Furthermore, the 2025/26 PCN DES specification also requests more data-set recording, including ethnicity. This data capture will help to inform action around future health inequalities and targeted messaging to specific groups.
There are a number of quality improvement activities that we’ve outlined for you below to help achieve this, which devolved nations can also adopt.

1. Start recording family history of prostate, breast and ovarian cancer and any genetic variation, as this is crucial information in understanding and recognising the increased risk of prostate cancer diagnosis.
2. Secondly, implement an agreed standardised ethnicity coding within your practice area/PCN/ICB so that auditing of patients of certain ethnicities becomes easier and will help to inform project work. We provide some suggestions further on.
3. If your practice is an iPlato or accuRx user, you can also text patients an ethnicity questionnaire, which when completed will be automatically coded into their records.

TRANSFORM screening trial

Our TRANSFORM screening study is a large-scale, national trial involving hundreds of thousands of men, investigating different screening approaches for prostate cancer. It will produce the definitive evidence needed to support a prostate cancer screening programme in the UK. Our recruitment to TRANSFORM has begun in 2025 and part of this set up involves identifying suitable primary and secondary care sites across the UK to take part in the study.
If you’re interested in finding out more about how to get involved, please get in touch.

Practical go to

Practical guidance on risk awareness work.

Find out more

Get in touch

Projects and Support   

If you require support in setting up your project then please contact us.
Educational support – find out about courses, CPD, resources.