Involvement

We believe that the involvement of people who have lived experience of prostate cancer significantly improves the quality and outcomes of our work. 

An individual’s first-hand experiences of the disease, as someone who has been diagnosed, or anyone with relevant lived experience such as a family member, carer or loved one is uniquely placed to help shape and deliver our work, adding value at all stages of the process.  

Through sharing your lived experience you can offer a different kind of expertise to clinicians or researchers. 

Whether it is speaking to users of our support services, working with Advisory Groups to influence decision-making or Patient and Public Involvement in our Research funding process, we aim to bring the voice of lived experience to our work. 

Only in this way will our support, whether in the form of services like our Specialist Nurses, or products like our health information publications, meets the needs of those affected by prostate cancer. 

All the involvement opportunities we create and promote will be designed to help us deliver our strategy and our business aims. We cannot achieve these without your help. 

1000 Men - shaping our 2026 strategy with lived experience

At Prostate Cancer UK, we’re planning for the future, and we want our priorities to reflect what’s important to our supporters. Our 1000 Men project, for the first time, gives people affected by prostate cancer a chance to tell us what’s important to them as we build our 2026 strategy.

Thank You

We aimed to hear from at least 1000 men, and we also wanted to hear from their partners, family members, and friends. Phase 1 of the project was our 1000 Men survey, which is now closed.

We asked respondents to rank areas of our potential support activities in order of importance to them. We received an incredible 1049 responses! A big thank you to all who participated!

What’s Next?

Phase 2 will happen in Spring 2025, so watch this space. Your voices are shaping the future of prostate cancer support, and we look forward to sharing the next steps with you.