Resource Library: palliative care and end of life support
We've created this resource library with support from our team of specialist nurses and other dedicated professionals to provide you with useful information and resources on palliative care and end of life support.
Advances in prostate cancer treatment have led to better survival rates. However, some men with prostate cancer will require palliative and end of life care. Our resource library aims to provide healthcare professionals with targeted information on a range of topics.
Palliative care for prostate cancer
Palliative care is a type of holistic care and can offer physical, emotional and practical support to men with advanced prostate cancer. It can also be offered to family and friends who may be looking for practical and emotional support.
While palliative care can include caring for someone who is nearing the end of their life, it can be offered at any stage of a person’s illness and is separate from end of life care. We’ve included a range of resources that will be relevant to you if you have a patient with advanced prostate cancer. You can read more about palliative care on the Marie Curie website.
End of life care can be a sensitive topic. That’s why we’ve created this simple, easy to use platform that will help you provide holistic support for men and their families – so they can navigate this challenging time with dignity and compassion.
We’ve included links to other reliable and verified sources.
For some men who are on the end of life pathway, it might be overwhelming to start getting their affairs in order. However, planning ahead can make sure men are able to discuss with their loved ones the things that are important to them and what they’d like to happen when they die. Some men might choose to prepare an advance statement (often called an advance decision or a ‘living’ Will). This AGE UK Advance Care Planning resource explains what this is, why a patient might want to prepare one and their requirements.
These resources might be useful for a patient or family member who wants to know how to get their affairs in order:
- Advance Care Planning and Guidance
- Planning ahead with a terminal illness,
- Funeral planning
- A guide to end of life services - this toolkit includes personalised recommendations for a person’s clinical care and treatment in a future emergency in which they’re unable to make or express choices.
- DNR (do not resuscitate) form
Scotland have some additional resources:
Men and their loved ones might have questions about the impact of dying on their finances and welfare. These resources provide information and advice on a range of finance and welfare topics:
Some men on the end of life pathway may experience side effects, such as fatigue or ongoing pain. These resources offer information about side effects at end of life:
- Advanced prostate cancer
- Metastatic spinal cord compression (MSCC)
- Managing pain in advanced prostate cancer
- Anticipatory medicines in palliative care
- Side effects of hormone therapy
- Managing symptoms in advanced prostate cancer
- Fatigue
- Acupuncture
- Managing diet problems in cancer
- Exercise and keeping active
Talking about cancer and a terminal diagnosis can be scary, difficult and emotional for men and their loved ones.
However, it can help them to talk openly about their thoughts and concerns. Talking about feelings around dying can provide some relief and comfort, and open up a safe space for men to begin conversations about their long-term wishes and care. These discussions may help them cope better.
These resources offer advice and support to help men with their emotional and mental wellbeing:
- Finding a local counsellor,
- Enquire at your local hospice about support groups
- Find your local Tackle support group
- Prostate Cancer UK’s specialist nurses,
- Making a memory box
- Macmillan Cancer Support,
- Hospice UK,
- Marie Curie,
- Carers UK,
- Compassion in Dying,
- Citizens Advice Bureau,
- The Cinnamon Trust - advice for terminally ill people with pets
- Age UK
- Living Made Easy (previously the Disabled Living Foundation)
- Penny Brohn
- Supporting someone who is approaching the end of life
Support for loved ones:
- The Loss Foundation
- Support for grieving children- Hope Again, Winston’s Wish
- Support for teenagers - riprap
- One to One Peer Support – Prostate Cancer UK
- Fruitfly Collective
Want us to add a resource?
We hope you’ve found this resource library helpful in supporting men and their loved ones at a difficult time. But if we’ve missed anything or if you’d like to ask a question or share your feedback, please get in touch.