Support for men with erection problems
We know that a lot of men have trouble getting or maintaining an erection after prostate cancer treatment. Unfortunately, men don’t always get the support they need to deal with this, when they need it. This is wrong. And it happens for a number of reasons that we’re working to address.
One of the reasons for this is outdated prescribing guidance - the current guidance was originally produced in 1999, and since then has only received piecemeal updates.
Our research with health commissioners has shown that 95% of Clinical Commissioning Groups in England still use this outdated guidance. So, we’ve been trying to get NHS England to produce better guidance on the treatments for erectile dysfunction so men aren’t denied the treatment they need. They’re reluctant to do this, but we’re not giving up.
We’ve joined together with 19 other charities, clinical experts and the British Association of Urological Nurses to write again to NHS England requesting action.
We’ve also been talking to men affected, like Paul and Jim, and collating data from extensive Freedom of Information requests to understand the service provision and support available across the UK. We’re using this information to influence and support healthcare providers directly, beginning with those who currently offer little or no support for erectile dysfunction for prostate cancer patients.
We’ll be working in devolved countries too, but we will need a different approach. Please watch this space for updates in 2016.
I've been on hormone therapy for almost three years, and I’m now in my last month of treatment. I have had erectile dysfunction for three years now, and can't say I've had any support on this matter. The medical profession need to bring this matter up to date and help sufferers of prostate cancer with these side affects from treatment for the condition.
Erectile dysfunction can affect relationships but counselling can help. Read this blog from Ellen Brady from Relate who works with survivors of prostate cancer to find out what's involved and how it can help.