Are you one of the 30,000 men with prostate cancer in England who received a questionnaire for a new study into the impact of the disease on your life and wellbeing? If so, get your pen ready and help us transform how health services support men like you.
The first wave of surveys for our Life after prostate cancer diagnosis study will land on men’s doorsteps today.
Funded in partnership with the Movember Foundation, the study aims to find out the impact of prostate cancer on everyday life by asking the only people who really know: men who’ve got the disease.
The team, led by researchers at the University of Leeds and Queen’s University Belfast, will – for the first time – collect a huge amount of information about the experiences of men who have been recently diagnosed with, treated for and lived with prostate cancer across the UK. This information will tell us how prostate cancer affects men’s lives and well-being, and give us the evidence we need to tell health services what needs to change and why.
This isn’t just another lifestyle survey or a pointless data capture exercise. It’s a chance to change the game for men with prostate cancer across the UK.
This isn’t just another lifestyle survey or a pointless data capture exercise. For the men who receive this survey, it’s a chance to change the game for men with prostate cancer across the UK. It’s a chance to report your experiences and not only have them listened to, but also acted upon. We’ll be taking the results we get from this project and using them to influence governments and health providers in all UK nations at all levels – from national decision-makers to local hospitals – to make sure they provide the support and care men say is important to them.
The survey is being delivered to men diagnosed between 18 and 42 months ago, whose local NHS Trusts have signed up to take part in the study. More surveys will be sent as and when other Trusts sign up. If you were diagnosed within this timeframe and didn’t get a survey, you may get one later on if your Trust opts to take part. Surveys will be sent to men in Wales, Scotland and Northern Ireland from 2016 onwards.
So if one of these surveys lands on your doorstep, please don’t throw it away. The questionnaire will only take about half an hour and will help us understand how tens of thousands of you have been affected by prostate cancer and what support you've had to deal with it. The research team doesn’t only want to know if your experience was bad, either. Knowing where and why men have good experiences of care will give us important examples of what should be happening elsewhere.