Living with and after prostate cancer
National Cancer Survivorship Initiative. Self management support for cancer survivors, Guidance for developing interventions March 2010 pg. 25

The Prostate Cancer Charity. Living with prostate cancer - online snapshot survey, Feb 2009

Fatigue (extreme tiredness)
Barsevick AM, Whitmer K, Sweeney C, Nail LM. A pilot study examining energy conservation for cancer treatment-related fatigue. Cancer Nurs. 2002 Oct;25(5):333-41.

Hervouet S, Savard J, Simard S, Ivers H, Laverdie`re J, Vigneault E Fradet Y,
Lacombe L. Psychological functioning associated with prostate cancer: cross-sectional comparison of patients treated with radiotherapy, brachytherapy, or surgery. J Pain Symptom Management 2005; 30: 474-484.

Kiely M, Smith A, Velikova G, House A, Selby P. Anxiety disorders in cancer patients: their nature, associations, and relation to quality of life. J Clin Oncol. 2002 Jul 15; 20(14):3137-48

Kyrdalen AE, Dahl AA, Hernes E, Cvancarova M, Fosså SD. Fatigue in hormone-naive prostate cancer patients treated with radical prostatectomy or definitive radiotherapy. Prostate Cancer Prostatic Dis. 2010 Jun; 13(2):144-50.

Lilleby W, Fossa S, Waehre H, Olsen DR. Long-term morbidity and quality of life in patients with localized prostate cancer undergoing definitive radiotherapy or radical prostatectomy. Int J Radiat Oncol Biol Phys 1998; 43: 735-743.

Maliski SL, Kwan L, Orecklin JR, Saigal CS, Litwin MS. Predictors of fatigue after treatment for prostate cancer. Urology 2005; 65: 101-108.

National Comprehensive Cancer Network. NCCN Clinical Practice Guidelines in Oncology, Cancer Related Fatigue v.1.2010

Segal R, Reid RD, Courneya KS, Malone SC, Parliament MB, Scott CG, Venner PM, Quinney HA, Jones LW, D'Angelo MES, Wells GA. Resistance exercise in men receiving androgen deprivation therapy for prostate cancer. J Clin Oncol. 2003. 21:1653-9.

Segal RJ, Reid RD, Courneya KS, Sigal RJ, Kenny GP, Prud'Homme DG, Malone SC, Wells GA, Scott CG, Slovinec D'Angelo ME. Randomized controlled trial of resistance or aerobic exercise in men receiving radiation therapy for prostate cancer. J Clin Oncol. 2009 Jan 20; 27(3):344-51.

Shahinian VB, Kuo YF, Freeman JL, Goodwin JS. Risk of the androgen deprivation syndrome in men receiving androgen deprivation for prostate cancer. Archives of internal medicine 2006; 166(4): 465-71.

Stone P, Hardy J, Huddart R A'Hern R, Richards M.. Fatigue in patients with prostate cancer receiving hormone therapy. European journal of cancer 2000; 36(9): 1134-41.

Keogh JW.  MacLeod RD. Body composition, physical fitness, functional performance, quality of life, and fatigue benefits of exercise for prostate cancer patients: a systematic review. Journal of Pain & Symptom Management. 2012; 43(1):96-110.

Sood A, Barton DL, Bauer BA, et al. A critical review of complementary therapies for cancer-related fatigue. Integr Cancer Ther; 2007; 6(1):8-13.

Urinary problems
Potosky AL, Davis WW, Hoffman RM, Stanford JL, Stephenson RA, Penson DF, Harlan LC. Five-year outcomes after prostatectomy or radiotherapy for prostate cancer: the prostate cancer outcomes study Journal of the National Cancer Institute 2004; 96:18

Shelley M, Wilt TJ, Coles B, Mason MD. Cryotherapy for localised prostate cancer. Cochrane Database of Systematic Reviews 2007; Issue 3

Stanford JL, Feng Z, Hamilton AS, Gilliland FD, Stephenson RA, Eley JW, Albertsen PC, Harlan LC, Potosky AL. 5-year urinary and sexual outcomes after radical prostatectomy: results from the prostate cancer outcomes study. J Urol 2005; 173: 1701-1705

Bowel problems
Dearnaley DP, Hall E, Lawrence D, Huddart RA, Eeles R, Nutting CM et al. Phase III pilot study of dose escalation using conformal radiotherapy in prostate cancer: PSA control and side effects, British Journal of Cancer. 2005; 92:488-498.

Kaptur G, Windsor PM and Mc Cowan C. The effect of aerobic exercise on treatment-related acute toxicity in men receiving radical external beam radiotherapy for localised prostate cancer. European Journal of Cancer Care. 2009.

Liu M, Moiseenko V, Agranovich A, Karvat A, Kwan W, Saleh ZH, Apte AA, Deasy JO. Normal Tissue Complication Probability (NTCP) modelling of late rectal bleeding following external beam radiotherapy for prostate cancer: A Test of the QUANTEC-recommended NTCP model. Oncol. 2010 Oct; 49(7):1040-4.
National Institute for Health and Clinical Excellence. Prostate cancer. Diagnosis and treatment. NICE clinical guideline 58. 2008

Pinkawa M, Piroth MD, Fischedick K, Nussen S, Klotz J, Holy R, Eble MJ. Self-assessed bowel toxicity after external beam radiotherapy for prostate cancer - predictive factors on irrigative symptoms, incontinence and rectal bleeding. Radiation Oncology. 2009; 4:36.

Sexual problems
Brotto LA, Morga Y, Breckon E. Psychological interventions for the sexual sequelae of cancer: A review of the literature. J Cancer Surviv 03 July 2010

Dalkin BL, Christopher BA. Preservation of penile length after radical prostatectomy: early intervention with a vacuum erection device. International Journal of Impotence Research 2007; 19 (5):501-4

Dorey G, Speakman MJ, Feneley RC, Swinkels A, Dunn CD. Pelvic floor exercises for erectile dysfunction BJU International 2005; 96; 595 - 597

Hannan JL, Maio MT, Komolova M, Adams MA. Beneficial impact of exercise and obesity interventions on erectile function and its risk factors. Journal of Sexual Medicine 2009; 6 Suppl 3; 254-61

Human Fertilisation and Embryology Authority, code of practise. 8th Edition 2009. Available at www.hfea.gov.uk

Molton IR, Siegel SD, Penedo FJ, Dahn JR, Kinsinger D, Traeger LN, Carver CS, Shen BJ, Kumar M, Schneiderman N, Antoni MH. Promoting recovery of sexual functioning after radical prostatectomy with group-based stress management: The role of interpersonal sensitivity. J Psychosom Res. 2008 May;64(5):527-36.

Nicolosi A, Laumann E O, Glasser D B, Moreira E D, Paik  A, Gingell C. Sexual behaviour and sexual dysfunctions after the age 40: the global study of sexual attitudes and behaviours. Urology 2004; 64: 991-997

Northouse LL.  Mood DW.  Schafenacker A.  Montie JE.  Sandler HM.  Forman JD.  Hussain M.  Pienta KJ.  Smith DC.  Kershaw T Randomized clinical trial of a family intervention for prostate cancer patients and their spouses.  Cancer.  110(12):2809-18, 2007 Dec 15.

Penedo FJ, Traeger L, Dahn J, Molton I, Gonzalez JS, Schneiderman N, Antoni MH. Cognitive behavioural stress management intervention improves quality of life in Spanish monolingual Hispanic men treated for localized prostate cancer: Results of a randomized controlled trial International Journal of Behavioural Medicine  Volume 14, Number 3, 164-172

Tengs T O, Osgood N D. The link between smoking and impotence: two decades of evidence.  Preventative Medicine 2001; 32 (6): 447-52

Side effects of hormone therapy
Autorino R, Perdonà S, D'Armiento M, De Sio M, Damiano R, Cosentino L, Di Lorenzo G. Gynecomastia in patients with prostate cancer: update on treatment options.Prostate Cancer Prostatic Dis. 2006;9(2):109-14.

Eastham JA. Bone health in men receiving androgen deprivation therapy for prostate cancer. J Urol 2007; 177:17-24

European Association of Urology. Guidelines on prostate cancer. 2010
Haseen F, Murray LJ, Cardwell CR, O'Sullivan JM, Cantwell MM. The effect of androgen deprivation therapy on body composition in men with prostate cancer: systematic review and meta-analysis. J Cancer Surviv 2010 Jun; 4(2):128-39.

Kim HS, Moreira DM, Smith MR, Presti JC Jr, Aronson WJ, Terris MK, Kane CJ, Amling CL, Freedland SJ. A natural history of weight change in men with prostate cancer on androgen-deprivation therapy (ADT): results from the Shared Equal Access Regional Cancer Hospital (SEARCH) database. BJU Int. 2011 Mar; 107(6):924-928.

McLeod DG. Tolerability of nonsteroidal antiandrogens in the treatment of advanced prostate cancer. Oncologist 1997; 2: 18-27.

Nelson CJ, Lee JS, Gamboa MC, Roth AJ. Cognitive effects of hormone therapy in men with prostate cancer: a review. Cancer 2008; 113:1097-106.

Potosky AL, Knopf K, Clegg LX, Albertsen PC, Stanford JL, Hamilton AS, Gilliland FD, Eley JW, Stephenson RA, Hoffman RM. Quality-of-Life outcomes after primary androgen deprivation therapy: results from the prostate cancer outcomes study. J Clin Oncol 2009; 19(17):3750-3757.

Shahinian VB, Kuo YF, Freeman JL, Goodwin JS. Risk of the androgen deprivation syndrome in men receiving androgen deprivation for prostate cancer. Archives of internal medicine 2006; 166(4): 465-71.

Stone P, Hardy J, Huddart R A'Hern R, Richards M.. Fatigue in patients with prostate cancer receiving hormone therapy. European journal of cancer 2000; 36(9): 1134-41.

Pain
Bader P, Echtle D, Fonteyne V et al. Guidelines on pain management. European Urology Association. 2010.

World Health Organisation. Cancer pain relief: with a Guide to Opioid Availability, 2nd ed. Geneva: WHO 1996.

Risk of other health problems
Alibhai SMH, Gogov S, Alllibhai Z. Long-term side effects of androgen deprivation therapy in men with non-metastatic prostate cancer: a systematic literature review. Critical reviews in Oncology/Haematology 60 (2006) 201-215

Department of Health and Human Services (HHS), Department of Agriculture (USDA). Dietary Guidelines for Americans, 2010. Washington, DC: US Government Printing Office; 2005.

Drudge-Coates L. Bone health: the effect of androgen deprivation therapy in prostate cancer patients. International Journal of Urological Nursing 2007; 1(1): 18-26.

Eastham JA. Bone health in men receiving androgen deprivation therapy for prostate cancer. J Urol 2007; 177:17-24

Galvão DA, Taaffe DR, Spry N, Joseph D, Newton RU. Cardiovascular and metabolic complications during androgen deprivation: exercise as a potential countermeasure. Prostate Cancer Prostatic Dis. 2009; 12(3):233-40.

Gomella LG. Contemporary use of hormonal therapy in prostate cancer: managing complications and addressing quality-of-life issues. BJU International 2007; 99 Supp.1: 25-29.

Hakimian P, Blute M Jr, Kashanian J, Chan S, Silver D, Shabsigh R. Metabolic and cardiovascular effects of androgen deprivation therapy BJU 2008; 102:1509-14.

Isbarn H, Boccon-Gibod L, Carroll PR, Montorsi F, Schulman C, Smith MR, Sternberg CN, Studer UE  Androgen deprivation therapy for the treatment of prostate cancer: consider both benefits and risks. Eur Urol. 2009 Jan; 55(1):62-75.

Lichtenstein AH, Appel LJ, Brands M, et al. Diet and lifestyle recommendations revision 2006: a scientific statement from the American Heart Association Nutrition Committee. Circulation 2006; 114:82-96

National Osteoporosis Society. Osteoporosis: causes, prevention and treatment. 2001. Bath: NOS.

Smith MR, Boyce SP, Moyneur E, Duh MS, Raut MK, Brandman J. Risk of clinical fractures after gonadotropin-releasing hormone agonist therapy for prostate cancer. J Urol. 2006 Jan; 175(1):136-9; discussion 139.

Diet and physical activity
Chan JM, Holick CN, Leitzmann MF, Rimm EB, Willett WC, Stampfer MJ, Giovannucci EL. Diet after diagnosis and the risk of prostate cancer progression, recurrence, and death (United States). Cancer Causes Control. 2006; 17(2):199-208.

Department of Health. Start Active, Stay Active. A report on physical activity for health from the four home countries' Chief Medical Officers (2011) Available at: http://www.bhfactive.org.uk/homepage-latest-news-item/75/index.html

Food Standards Agency: http://www.eatwell.gov.uk/healthydiet/eighttipssection/8tips/ Accessed 10 August 2010.

Ma RW-L, Chapman K. A systematic review of the effect of diet in prostate cancer prevention and treatment. Journal of Human Nutrition and Dietetics. 2009; 22:187-99.

Moore SC, Peters TM, Ahn J, Park Y, Schatzkin A, Albanes D, Ballard-Barbash R, Hollenbeck A, Leitzmann MF. Physical activity in relation to total, advanced, and fatal prostate cancer. Cancer Epidemiol Biomarkers Prev. 2008; 17(9):2458-66.

Segal R, Reid RD, Courneya KS, Malone SC, Parliament MB, Scott CG, Venner PM, Quinney HA, Jones LW, D'Angelo MES, Wells GA. Resistance exercise in men receiving androgen deprivation therapy for prostate cancer. J Clin Oncol. 2003. 21:1653-9.

Thorsen L, Courneya KS, Stevinson C, Fossa SD. A systematic review of physical activity in prostate cancer survivors: outcomes, prevalence, and determinants. Support Care Cancer. 2008; 16:987-997.

Van Patten CL, de Boer JG & Tomlinson Guns ES. Diet and dietary supplement intervention trials for the prevention of prostate cancer recurrence: A review of the randomized controlled trial evidence. The Journal of Urology. 2008; 180:2314-2

World Cancer Research Fund/American Institute for Cancer. Food, Nutrition, Physical Activity and the Prevention of Cancer: A Global Perspective. Washington DC: AICR, 2007.

Davies NJ.  Batehup L.  Thomas R. The role of diet and physical activity in breast, colorectal, and prostate cancer survivorship: a review of the literature. British Journal of Cancer. 2011; 105 Suppl 1:S52-73.

Prostate cancer and your feelings
Bailey D, Mishel M, Belyea M, Stewart J, Mholer, Clark J (2004) Uncertainty intervention for watchful waiting in prostate cancer. Cancer Nurs 27: 339-346

Beard C, Stason WB, Wang Q, Manola J, Dean-Clower E, Dusek JA, Decristofaro S, Webster A, Rosenthal DS, Benson H. Effects of complementary therapies on clinical outcomes in patients being treated with radiation therapy for prostate cancer. Cancer. 2010 Aug 27.

Ben-Tovim DI, Dougherty ML, Stapleton AM, Pinnock CB Coping with prostate cancer: a quantitative analysis using a new instrument, the centre for clinical excellence in urological research coping with cancer instrument. Urology. 2002 Mar; 59(3):383-8.

Bottomley, A., Where are we now? Evaluating two decades of group interventions with adult cancer patients. J Psychiatr Ment Health Nurs, 1997. 4(4): p. 251-65.

Carlson LE, Bultz BD. Mind-body interventions in oncology. Curr Treat Options Oncol. 2008 Jun;9(2-3):127-34.

Couper, JW, Bloch S, Love A, Duchesne G, Macvean M and Kissane DW. The psychosocial impact of prostate cancer on patients and their partners. Medical Journal of Australia, 185(8) 428-432

Foley E, Baillie A, Huxter M, Price M, Sinclair E. Mindfulness-based cognitive therapy for individuals whose lives have been affected by cancer: a randomized controlled trial. J Consult Clin Psychol. 2010 Feb;78(1):72-9.

Helgason AR., Dickman PW, Adolfsson J et al. Emotional Isolation: Prevalence and the Effect on Wellbeing Among 50-80-Year-Old Prostate Cancer Patients, Scand J Urol Nephrol 35: 97-101, 2001

Khan NF, Ward AM, Watson E, Rose PW. Consulting and prescribing behaviour for anxiety and depression in long-term survivors of cancer in the UK. Eur J Cancer. 2010 Aug 18

Navon L, Morag A. Advanced prostate cancer patients' relationships with their spouses following hormonal therapy. Eur J Oncol Nurs. 2003 Jun; 7(2):73-80; discussion 81-2.

Nelson C, Jacobson CM, Weinberger MI, Bhaskaran V, Rosenfeld B, Breitbart W, Roth AJ. The role of spirituality in the relationship between religiosity and depression in prostate cancer patients. Annals of Behavioural Medicine 38(2): 105-14, 2009 Oct

Oliffe J. Embodied masculinity and androgen deprivation therapy. Sociology of Health and Illness 2006; 28(4): 410-432.

Parahoo K, McCaughan E, Noyes J, McDonough S. The effectiveness of psychosocial interventions for men with prostate cancer: a systematic review. Intervention Protocal. Cochrane Database of Systematic Reviews. 2010, Issue ^. Art No.: CD008529

Pirl WF, Siegel GI, Goode MJ, Smith MR. Depression in men receiving androgen deprivation therapy for prostate Cancer: a pilot study. Psychooncology 2002;11:518-23.

Rayner L, Price A, Evans A, Valsraj K, Higginson IJ, Hotopf M. Antidepressants for depression in physically ill people. Cochrane Database of Systematic Reviews 2010, Issue 3. Art. No.: CD007503. DOI: 10.1002/14651858.CD007503.pub2

Ream E, Quennel A, Fincham L, Faithfull S, Knoo V, Wilson-Barnett J, Richardson A. Supportive care needs of men living with prostate cancer in England: a survey. Br J Cancer. 2008 Jun 17; 98(12):1903-9.

Seidman SN, Spatz E, Rizzo C, Roose SP. Testosterone replacement therapy for hypogonadal men with major depressive disorder: a randomized, placebo-controlled clinical trial. J Clin Psychiatry 2001; 62:406-12.

Seidman SN, Walsh BT. Testosterone deficiency and depression in aging men. Am J Geriatric Psychiatry 1999; 7:18-33.

Seidman SN. Testosterone and depression in aging men: Pathogenic and therapeutic implications. J Gend Specif Med 2001; 4:44-8.

Thorsen L, Courneya KS, Stevinson C, Fossa SD. A systematic review of physical activity in prostate cancer survivors: outcomes, prevalence, and determinants.
Support Care Cancer. 2008; 16:987-997.

Wallace M. Uncertainty and quality of life of older men who undergo watchful waiting for prostate cancer. Oncology Nursing Forum 2003; 30, 303-309.
Weber BA, Sherwill-Navarro P. Psychosocial consequences of prostate cancer: 30 years of research. Geriatric Nursing 2005; 26:166-75.

Wilkins D. Untold problems: A review of the essential issues in the mental health of men and boys. Men's Health Forum. January 2010. Available at: http://www.nmhdu.org.uk/silo/files/untold-problems-a-review-of-the-essential-issues-in-the-mental-health-of-men-and-boys.pdf

Weinberger, M.I., Nelson, C.J., Roth, A.J. (2011). Letter to the Editor - self reported barriers to mental health treatment among men with prostate cancer. Psycho-Oncology 20:444-446

Gray, R.E., Fitch, M., Phillips, C., Labrecqu M., Fergus K. (2000). Managing the impact of illness: The Experiences of men with prostate cancer and their spouses. Journal of Health Psychology. 5: 531

Hedestig O, Sandman PO, Tomic R, Widmark A. Living after external beam radiotherapy of localized prostate cancer: a qualitative analysis of patient narratives. Cancer Nurs. 2005 Jul-Aug;28(4):310-7.

Cecil, R., McCaughan, E., Parahoo, K. (2008). 'It's hard to take because I am a man's man': an ethnographic exploration of cancer and masculinity. European Journal of Cancer Care. 19, 501-8.

O'Brien, R., Rose, P.W., Campbell, C., Weller, D., Neal, R.D., Wilkinson, C., Watson, E.K. (2010). Experiences of follow-up after treatment in patients with prostate cancer: a qualitative study. British Journal of Urology International, 106, 998-1003.

Jonsson A, Aus G and Bertero C. Living with a prostate cancer diagnosis: A qualitative 2-year follow-up. The Aging Male 2009; 13: 25-31.

Roesch SC, Adams L, Hines A, Palmores A, Vyas P, Tran C, Pekin S, Vaughn AA. Coping with prostate cancer: a meta-analytic review. J Behav Med 2005; 28(3):281-93.

Blank TO, Bellizzi KM. After prostate cancer: predictors of well-being among long-term prostate cancer survivors. Cancer. 2006; 15;106(10):2128-35.

De Sousa, A., Sonavane, S., Mehta, J. (2012) Psychological aspects of prostate cancer: a clinical review. Prostate cancer and Prostatic Diseases. 15, 120-127

Relationships and family life
Couper J, Bloch S, Love A, Duchesne G, Macvean M, Kissane D. Coping patterns and psychosocial distress in female partners of prostate cancer patients. Psychosomatics. 50(4):375-82, 2009 Jul-Aug

Giesler RB, Given B, Given CW, Rawl S, Monahan P, Burns D, Azzouz F, Reuille KM, Weinrich S, Koch M, Champion V. Improving the quality of life of patients with prostate carcinoma: a randomized trial testing the efficacy of a nurse-driven intervention. Cancer. 2005 Aug 15;104(4):752-62.

Harden J, Northouse L, Mood, D. Qualitative analysis of couples' experience with prostate cancer by age cohort. Cancer Nursing, vol 29. No 5, 2006

Manne S, Badr H. Zaider T. Nelson C. Kissane D. Cancer related communication, relationship intimacy, and psychological distress among couples with localised prostate cancer. Journal of Cancer Survivorship. 4(1):74-85, 2010 March

Northouse LL.  Mood DW.  Schafenacker A.  Montie JE.  Sandler HM.  Forman JD.  Hussain M.  Pienta KJ.  Smith DC.  Kershaw T.  Cancer.  Randomized clinical trial of a family intervention for prostate cancer patients and their spouses. 110(12):2809-18, 2007 Dec 15.

Support for partners, family and friends
Boehmer U, Clark JA: Communication about prostate cancer between men and their wives. J of Fam Pract 2001, 50:226-231.

Cliff A, Macdonagh R. Psychosocial morbidity in prostate cancer: ll. A comparison of patients and partners. BJU International. 2000;86:834-9.

Eton DT, Lepore SJ. Prostate cancer and health-related quality of life: a review of the literature. Psycho-Oncol. 2002; 11(4):307)

Evertsen JM Wolkenstein A S. Female partners of patients after surgical prostate cancer treatment: interactions with physicians and support needs. BMC Family Practice 2010, 11:19

Garos S.  Kluck A.  Aronoff D. Prostate cancer patients and their partners: differences in satisfaction indices and psychological variables.  Journal of Sexual Medicine.  4(5):1394-403, 2007 Sep.

Harden J, Schafenacker A, Northouse L, Mood D, Smith D, et al: Couples' experiences with prostate cancer: focus group research. Oncol Nurs Forum 2002, 29(4):701-709.

Kornblith AB, Herr HW. Quality of life of patients with prostate cancer and their spouses. Cancer. 1994; 73:2791-802.5.

Lavery JF, Clarke VA: Prostate cancer: patients' and spouses' coping and marital adjustment. Psychol Health Med 1999, 4(3):289-302.

Manne S, Badr H, Zaider T, Nelson C, Kissane D. Cancer-related communication, relationship intimacy, and psychological distress among couples coping with localised prostate cancer. J Cancer Surviv (2010) 4:74-85

Northouse LL, Mood DW, Montie JE, Sandler HM, Forman JD, et al: Living with prostate cancer: patients' and spouses' psychosocial status and quality of life. J Clin Oncol 2007, 25:4171-4177.

Sinfield P, Baker R, Ali S et al. The needs of carers of men with prostate cancer and barriers and enablers to meeting them: a qualitative study in England. European Journal of Cancer Care 2012; 21: 527-534.

Daily life and prostate cancer
de Boer AG, Verbeek JH, Spelten ER, Uitterhoeve AL, Ansink AC, de Reijke TM, Kammeijer M, Sprangers MA, van Dijk FJ. Work ability and return-to-work in cancer patients. British Journal of Cancer (2008), 98, 1342-1347

Grunfield EA, Rixon L, Eaton E, Cooper AF. The organisational perspective on the return to work of employees following treatment for cancer. J Occup Rehabil. 2008 Dec; 18(4):381-8

The Prostate Cancer Charity. Living with prostate cancer - online snapshot survey, Feb 2009