Our Specialist Nurse telephone service offers free and confidential support and information to people who are affected by or concerned by prostate cancer or disease. Our Health Information service produces and distributes printed resources about prostate cancer and disease which are available to order or download from our website.
The services were funded by the Movember Foundation and Marks & Spencer.
Anyone with questions about prostate cancer and disease can call a Specialist Nurse who can give support and information. Each year more and more people are calling our nurses. In 2012-13 we received over 6,000 calls, and we wanted to evaluate the service so we could find out more about its impact and how we could improve it.
Men and their families can also download or order our free publications that cover a range of topics from awareness of prostate cancer to information about different treatments, written and edited by our Health Information team. We also produce audio and video resources.
We asked a research company, Shared Intelligence, to evaluate our services during 2013. They analysed our survey of telephone service users and carried out telephone interviews with them as well as healthcare professionals and our staff. We also wanted to find out more about the use of our publications, and therefore six focus groups were carried out in healthcare settings where staff and practitioners meet men with prostate cancer, from specialist cancer centres to a prison. Eight focus groups were also carried out in community settings to find out more about diverse groups of people who could use our information, but who had not yet used our services.
I was really emotionally upset, and the nurse was so helpful and so reassuring. All of it has been useful but that one-to-one contact and being able to ask questions and talk about an individual case was incredibly useful.
The report made a number of recommendations for improving the quality and reach of our services, to better meet the needs of service users.